Okay, on a happy note…we are almost finished with winter! Only about 60 days until spring…maybe we will get through this year without too much snow and cold weather…We all need to save on these heating bills…keep your fingers crossed!!!
Not much else to talk about today…take care and have a great weekend!!!

I have many, many medical problems. I have dealt with my disability insurance company since June. They say, since I wrote a book (took years to do!), can write on a blog, and I guess they think because I’m not in a total vegetative state, they think I’m not disabled.
Now, trust me…if I could work, I definitely would. I didn’t wait until I was 40 to go to school to become a nurse, only to be disabled a few years later. I don’t like having one surgery after another, after another, after another….Let me explain….

I will go back to when this mess started…. April 2005…
I was taken out of work due to my herniated discs in my back. June 2005, major back surgery… rods put in my back…Now, not to go into great detail, I had some relief for a few months but things went down hill…
October 2006….more back surgery…first rods taken out, now rods put in complete lumbar spine (lower back, to the tail bone)…
2007…Jaw surgery, joint in my lower jaw locked, (bone in bad shape)
2008…Pacemaker…my heart decided it didn’t want to beat fast enough…
With out going month to month and year to year, let me tell you what else I have had since 2008..
2 surgeries on my right shoulder
3 surgeries on my right hip
Now, I think that’s 9, count them, 9 surgeries since June of 2005…The last hip surgery made my 34th or 35th surgery since I was born. I’m not complaining, I’m just saying, I have worked since I was 11 and 12 years old. Between paper routes and babysitting as a child myself, I have always taken pride in trying to “pay” my way.
I suffer from terrible bones. I started the degeneration process way to young and it continued to get worse. I didn’t find all this out until a few years ago. I have been told that I may be in a wheel chair soon because of problems I have with standing for too long or trying to walk very far. It causes me so much pain.
With all this being said, I also suffer from fibromyalgia, chronic pain, chronic fatigue, osteoporosis, degenerative disc disease, arthritis, and who knows what else.
I have tried to work through this pain, do any of you know just how hard it is to HURT everyday of your life? I try to stay positive, try to be “happy”, try to be there for all my friends and family…it isn’t easy.
I hear all the time, “You don’t look ‘sick’”. Well, who wants to “look” sick? They don’t see me, like now, still in my jammies, trying to get myself up to get a shower and get dressed.
The chronic fatigue causes me to have a week or two where I can’t get up out of my way, then a couple of weeks where I can’t sleep but for only an hour or two at a time. Sleep a couple of hours, up for 3 or 4, then another nap. Now, do any of you know of a job I could do where I could work a couple of hours, sitting down, then go home for 2 or 3 and then maybe work another hour or so??? Then, the next couple of weeks stay home because I sleep 20 out of 24 hours???
Okay, now, because I stay in pain,. try not to take pain medications, try therapy, try to walk a little further each day to see if I can improve the muscles I have left, try to act “normal” for my friends and family by doing some house work a couple of days a week, I’m not disabled??? I haven’t “cleaned” my house for years. My husband works all day, comes home and takes care of me by doing most of the cooking and cleaning. My friends and family come over and help me all the time. They know on the days I feel somewhat “normal” I will overdo, then end up in bed for another 3 days… It is a terrible cycle. I don’t like it at all…

To top it all off…my many doctors, tell me that they won’t release me to work. Who in this world is going to hire someone not released to go to work? What kind of risk would they be taking? Furthermore, how safe would it be for me to be working anywhere while taking pain medications? I don’t think that would be safe for anyone.

So, I need to know what you think? I am not trying to take advantage of the insurance company, and I’m also not going to give up. I would love to be able to get better. The problem is, my joints and bones don’t want to play fair…This doesn’t mean that I am going to stay in a bed 24/7. I am going to try to lead as normal a life as I can, I am only 53 years old. But that doesn’t mean that I could hold down a 40 hour a week job, or even a 20 hour a week job…

I have many, many medical problems. I have been dealing with my disability insurance company since June. They say, since I wrote a book (took years to do!), can write on a blog, and I guess they think because I’m not in a total vegetative state, they think I’m not disabled.
Now, trust me…if I could work, I definitely would. I didn’t wait until I was 40 to go to school in order to become a nurse, only to be disabled a few years later. I don’t like having one surgery after another, after another, after another….Let me explain….

I will go back to when this mess started…. April 2005…
I was taken out of work due to my herniated discs in my back. June 2005, major back surgery… rods put in my back…Now, not to go into great detail, I had some relief for a few months but things went down hill…
October 2006….more back surgery…first rods taken out, now rods put in complete lumbar spine (lower back, to the tail bone)…
2007…Jaw surgery, joint in my lower jaw locked, (bone in bad shape)
2008…Pacemaker…my heart decided it didn’t want to beat fast enough…
With out going month to month and year to year, let me tell you what else I have had since 2008..
2 surgeries on my right shoulder
3 surgeries on my right hip
Now, I think that’s 9, count them, 9 surgeries since June of 2005…The last hip surgery made my 34th or 35th surgery since I was born. I’m not complaining, I’m just saying, I have worked since I was 11 and 12 years old. Between paper routes and babysitting as a child myself, I have always taken pride in trying to “pay” my own way.
I suffer from terrible bones. I started the degeneration process way to young and it continued to get worse. I didn’t find all this out until a few years ago. I have been told that I may be in a wheel chair soon because of problems I have with standing for too long or trying to walk very far. It causes me so much pain.
With all this being said, I also suffer from fibromyalgia, chronic pain, chronic fatigue, osteoporosis, degenerative disc disease, arthritis, and who knows what else.
I have tried to work through this pain, do any of you know just how hard it is to HURT everyday of your life? I try to stay positive, try to be “happy”, try to be there for all my friends and family…it isn’t easy.
I hear all the time, “You don’t look ‘sick’”. Well, who wants to “look” sick? They don’t see me, like right now, still in my jammies, trying to get myself up to get a shower and get dressed.
The chronic fatigue causes me to have a week or two where I can’t get up out of my own way, then a couple weeks where I can’t sleep but for only an hour or two at a time. Sleep a couple hours, up for 3 or 4, then another nap. Now, do any of you know of a job I could do where I could work a couple hours, sitting down, then go home for 2 or 3 and then maybe work another hour or so??? Then, the next couple of weeks stay home because I sleep 20 out of 24 hours???
Okay, now, because I stay in pain,. try not to take pain medications, try therapy, try to walk a little further each day to see if I can improve the muscles I have left, try to act “normal” for my friends and family by doing some house work a couple days a week, I’m not disabled??? I haven’t “cleaned” my house for years. My husband works all day, comes home and takes care of me by doing most of the cooking and cleaning. My friends and family come over and help me all the time. They know on the days I feel somewhat “normal” I will overdo, then end up in bed for another 3 days… It is a terrible cycle. I don’t like it at all…

To top it all off…my many doctors, tell me that they won’t release me to work. Who in this world is going to hire someone not released to go to work? What kind of risk would they be taking? Furthermore, how safe would it be for me to be working anywhere while taking pain medications? I don’t think that would be safe for anyone.

So, I need to know what you think? I am not trying to take advantage of the insurance company, and I’m also not going to give up. I would love to be able to get better. The problem is, my joints and bones don’t want to play fair…This doesn’t mean that I am going to stay in a bed 24/7. I am going to try to lead as normal a life as I can, I am only 53 years old. But that doesn’t mean that I could hold down a 40 hour a week job, or even a 20 hour a week job…

So much has been going on since my last blog…I have been dealing with my chronic pain.  Back to pain management, more doctors, and more tests.  It appears I may need more hip surgery.  Just hoping and praying, that won’t happen.  Just have to wait and see.

My family needs lots of support, love and prayers right now.  My mother-in-law passed away on the 8th of June, unexpected, from a massive heart attack.  We are all still in shock from this.  Just trying to get through the next few days…

Let me tell you all just a little about Ruth…

Such a wonderful woman just doesn’t say it well enough!  She was a wife, mother, grandmother, great-grandmother, sister, aunt, and just plain “friend” to everyone.  I have called Ruth “mom” for 30 years.  She was always there for me.  Nine years ago, when I lost my mother, she step right up and “became” my second mother.  We have had mom living with us for sometime now, I would sit in the morning and wait for her to come out of her room.  Our morning “talks” have been the greatest.  We “solved” the problems of the world every morning! haha

My mornings will never be the same.  I sat this morning, waiting for her to come out of her room, of course, she couldn’t do that .  I was lost.  The silence was deafening.  This is not going to be easy.

She helped take care of each and every one of her grandchildren and most of her great-grandchildren, not including all the children that biologically weren’t hers, still they called her “mom mom”.  There wasn’t a child born whether family or friends that she didn’t love and treat like her own.

We will be having a viewing for her on Monday, June 13th from 6 – 8 at Holloway Funeral Home in Salisbury, MD with the services on Tuesday at 11am and a viewing prior to from 10 -11.  Please keep the family in your thoughts and prayers!

The kids are really enjoying all of it!  I shouldn’t let them eat all of it, they are going to weigh a ton!

Since Easter is here, I really am getting busy.  I have to get my bunny cake made… hehehe, all the kids like that.  The food is always good at Easter dinner.  What are you all having?  Are you getting together with your families?  Are you going out to eat?  Whatcha gonna do???  My husbands family always has a big dinner with everyone at the church hall.  There are just too many of us now to go to one house.  The family keeps growing and growing,  and growing!  I can’t believe how old I’m getting.  Oh well, at least I wake up in the morning!

Now is the time for us to all be happy about what we have.  Not what we don’t.  Share stories with the young people.  They really do enjoy hearing some of the old traditions.  I know my children and their spouses really do like hearing some of the elders tell their tales from years past!

Well, I have to get busy…Lots to make…

HAVE A WONDERFUL EASTER!!!

This crazy weather is driving everybody nuts.  Some sinus, some colds, some pneumonia, and just some of us are plain yucky!!!  I wish I had a cure!!!  I know that one way to get rid of this mess…go to Florida and lay in the sun!!!  I could go to my sister’s in AZ.  It’s always warm out there!!!  Remember, it’s a DRY heat!!! hahahaha Kathy!

However, it is the truth.  My joints don’t ache when I’m there either!!!

So, let me tell you about how I’m procrastinating today!!!  I still don’t have my taxes done…I am thinking about selling my homemade oatmeal raisin cookies…I have got to get editing my book…and last but certainly not least, I need to work on the sequel to Waking Up.  I just can not get my butt up and moving.  I feel so bad.  The cold meds make me sleepy.  I probably need to sleep anyway.  I don’t sleep very well at night.  My bones ache like I’m 100 years old.  I’m a mess.

Oh well, it will be better tomorrow, I hope!!!

We went to Margaretsville, NC this weekend for the grandsons to race their go-karts.  It was supposed to rain here at home but be beautiful there!!!  Guess what??? Mother nature threw us a curve ball.  It rained there!!!  Poor Ryan didn’t even get to race his second race.  He got hit in the first race, his chain came off so he was out of that race and then the rain cancelled his second.  Tyler got to race his but was upset with his self because he didn’t do as well as he wanted.  He did fine but these boys are so hard on themselves!!!  The big money race couldn’t even run so they called it and the way the guys/gals qualified is the way they paid out the money!!!  Boy what a weekend.  At least we ate well!  I had so much food.  We ate and ate and ate!!!

Now, the worse part of the trip…cleaning everything up!  Yuck.  I hate the unpacking and cleaning.  The poor motor home looks like a bomb went off in it!!!  Between the food that was dropped, the mud, and just all the traffic in and out!  That’s camping!!!

Once I get all that done (if I can make it), I will get back to writing… oops, taxes have to be done first!!!  April 18th is fast approaching.  Funny, I can get other people’s taxes done but mine are always the last!  Gotta do that!

Okay, enough said…I will be back soon with more exciting news…

Have a wonderful day!

Why in the world don’t we all raise a huge fuss about this freezing wages thing??????  How could anyone in their right mind say that our military, the ones defending us, the very ones that provide us with this “freedom” we have, will have their pay frozen???  Are they crazy or what????

Let’s demand that the President, congress, House, and all of them give up their pay…In my opinion,  I say it again…IN MY OPINION, if they all gave up their pay for a month, most of our problems would be solved!!!  Why would they be exempt?  Come on folks, we have got to stand up against this mess.  It doesn’t take a rocket scientist to figure this out.

Like it had been said on Facebook, the athletes get pain millions…they give up entertainment.  Please tell me why we pay so much to go to a ball game or fight or race??? We are the ones who have allowed these people to make the money they do.  Now, I’m not saying they don’t deserve to be paid but how much are the lives of our service men and women worth???  If it weren’t for them, we wouldn’t have the freedom to go to these events…think about it!

Let me know what you think, am I crazy or what??? (Well, we know I’m off my rocker many times!!!)

Thanks…

Let me see what I can tell you all today…

Only thing going on is me being in pain!!!  I had to go for a “function test” on Tuesday and I am still having trouble moving around.  My grandsons will be racing in North Carolina this weekend and I need to get some food fixed for us!  I need to get moving but my back and legs just don’t want to work!!!  I can’t take my pain medication because then I will be sleeping…always something!

Okay, next project… I am trying to work on my books.  I have to get these sales going folks…Are you spreading the word???  Have you bought my book?  I’m going to get myself busy trying to get a book signing going on here at our local Barnes and Noble.  Anybody have any suggestions about how I go about that???

Next, I’m working on the sequel!!!!  Are you all ready for it????  I have more, much more to do but I’m working on it.  Don’t give up on me!!!

 

Now, what I really want to talk with everyone about is our Racing Team…  I have two grandsons who race go-karts.  They are doing very well with it and hope to someday race Nascar.  Ryan, 13, has been racing for 7 years now.  He has won championships and is winning races…Tyler, 10, is also doing a great job.  This is his 5th year racing.  So, the point to all this is…we are looking for SPONSORS… Depending on the amount you donate, your name will appear on either/or/and the go-karts as well as the go-kart trailer.  We race in Maryland, Delaware, Virginia and North Carolina.  I will be getting packages together, listing stats and more information.

Okay, I’m now going to give you all another laughter cartoon!